It has been six weeks since my feeding was placed. I was hoping the pain in my abdomen would decrease as the days and weeks passed. It did lessen at first, but now, my feeding tube site is extremely sore. I finally took out the stitches which were holding the tube in place on Sunday. As soon as the feeding tube was free to hang on its own, pain exploded at the feeding tube insertion site. Any time I touch the feeding tube, I writhe in pain. It is hard to move because if I move, my feeding tube moves. I tell myself it is my imagination I am in so pain. It has been six weeks. The pain is not getting worse…or is it?
I am desperate for relief. I do not want to take pain medicine because I have a limited supply. My appointment with my GI doctor is not until the end of May. Can I wait that long for medical intervention? Will the doctor agree I should have the feeding tube removed? Then, I will have to have a consult with the surgeon and get a surgery set-up. If I use the timeline of getting the feeding tube placed, to have the feeding tube removed would not happen until September. Five months of unrelenting pain. Five months of having no energy due to the constant pain. And then there is always possibility that my GI doctor will not agree for me to have the feeding tube removed. What then?
I wait. I pray. I ask God for relief from this non-stop pain. My back hurts. My shoulder hurts. My abdomen hurts and swells any time I eat. I thank God I am able to get about two thirds of my calories via IV nutrition…but I wonder how long this current GI crisis will last.
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