Wednesday, January 17, 2018

Climbing a mountain, just to be pushed back down (again)

As Mitochondrial Disease continues to challenge my life, one area that has continually been affected has been my vision. For years, I have been in an epic battle to get the correct eyeglass prescription. When I abruptly could no longer see my computer screen without developing a severe headache and feeling as though I was going to throw up from double vision, I decided in October to get an eye exam. That eye exam was...not really an exam at all. The doctor freaked out when he saw I used a wheelchair and needed a ventilator to breathe. I was pushed out of his office without ever getting an eye exam. Being completely defeated, I sought a referral from a friend to see her eye doctor.

Today, I was so hopeful. My back, neck, head, right eye and right side of my face have been plaguing me with severe pain. Today, perhaps, I would get an eyeglass prescription to be able to see text and other near items. The doctor was very kind but seemed to dismiss my concern that I cannot see close-up. She suggested I get cheap reading glasses from the Dollar Store, but she completely seemed to miss the fact that I have significant double vision. Cheap reading glasses will not fix the double vision or the abundance of symptoms associated with the double vision. Moreover, she never tested my near vision.

Perhaps I was too complicated of a case for this doctor. She told me to follow up with a neurologist, and the neurologist would help with my vision. This is quite comical because I have in the past mentioned my vision difficulties to my neurologist, and the response is always the same: "Go see your eye doctor." I guess the good news is that the eye doctor told me to follow up in two years. Wow, I get to grapple for two more years without being able to see close up. How exciting! (Insert sarcasm here!)

So the struggle to see, and the search for relief from these never-ending symptoms continues. If anyone has suggestions or recommendations, please let me know. It would be such a blessing to be able to see again.

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