Don’t open that letter. Don’t answer the phone. Don’t look at social media.

Usually my life is pretty low key. I go from day to day without much happening. Once in a while something dramatic will occur—sepsis, blood clots, pancreatitis, etc. However, these episodes are usually spaced out.

Today was a chaotic day. It actually started last night, when before going to bed, I felt the need to check Facebook. There on my newsfeed was a notice a woman who had Mitochondrial Disease passed away. I did not know her personally, but I felt drawn to look at her profile and obituary. I found out she used to live very close to me. I would drive by her home frequently going to the farmer’s market and grocery store. How sad it was I was so close to someone else with the same medical condition and never knew it!

Today, I received a bill stating I owe almost $750 for medical supplies I thought were covered by insurance. I found out today, they are not. I just received another shipment of supplies last week. I will have to wait to see if I also get billed for those. If I do, my balance will be almost $1,000.

Shortly after finding out about the medical bill, I received a phone call from my pancreas doctor. My original appointment was supposed to be in October. When October came, I found out it was never scheduled. I then scheduled the next available appointment which was in January. Today, that appointment was cancelled because the doctor will be out of the office. The next available appointment is in February.

Feeling a little defeated, I check my email. There is a notification I have a new YouTube comment on a video. The comment is negative and sarcastic. I do not respond to the comment. As a rule, I wait 24 hours to a week to respond to comments which require any sort of thought. Moreover, I have to decide if I even want to respond. Sometimes it is not worth the effort to explain my health to someone if I feel it will fall on blind eyes.

So that has been my day. Death, a medical bill, a cancelled appointment and a negative comment. I feel like just lying here and looking at the ceiling. I am ready to go to bed for the night.